The Carolina Institute for Developmental Disabilities at UNC
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NC Office on Disability and Health Surveillance Group

CIDD faculty work collaboratively with the NC Office on Disability and Health (NCODH) at the FPG Child Development Institute at the University of North Carolina at Chapel Hill and the NC Division of MH/DD/SAS and other statewide partners as the Disability and Health Surveillance Group. The primary mission of the group is to promote the health of people with disabilities by establishing a mechanism for the collection of baseline health related data on adults with intellectual/ developmental disabilities served by the state service system and to systematically bring interested state partners together to share information and data. This is a critical collaboration as most public health data systems, including the Behavioral Risk Factor Surveillance System (BRFSS), do not capture the health status of adults with developmental disabilities. Several years ago, NCODH, CIDD and the Division developed a health addendum modeled after NC BRFSS content and questions. This allowed for a comparison between groups: persons with disabilities, persons without disabilities and persons with I/DD receiving state supported services. The National Core Indicators data enable NCODH and others to target specific areas of concern, such as sedentary lifestyle, obesity, mammography screening, and dental care by adding selected questions to the surveys each year.

For more information, please contact: Debra Reinhartsen, Ph.D., Speech-Language Pathology, or Rebecca Pretzel, Ph.D., Psychology

Learn more about how to contact for services with the CIDD.

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