The Carolina Institute for Developmental Disabilities at UNC
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Who We Serve

UNC’s Carolina Institute for Developmental Disabilities (CIDD) is a University Center for Excellence in Developmental Disabilities (UCEDD) dedicated to providing exemplary clinical services to individuals of all ages who have concerns about or are at risk for intellectual and developmental disabilities. Thus, our specialized clinics focus exclusively on disorders that affect cognitive, social, communication, motor, and adaptive skill development. The CIDD also specializes in serving individuals with intellectual and/or developmental disabilities who may have co-existing behavioral, mental health, or medical health needs. Individuals who have or are suspected of having intellectual disability, autism spectrum disorder, traumatic brain injury, cerebral palsy, and/or genetic or medical conditions, which impact development, health, and independence would be appropriate referrals to the Institute.

Please note: Given the specialized nature of our services, there are limited appointment slots and many have lengthy waits. We do not accept referrals for individuals whose primary concerns are related to psychiatric (e.g., ADHD, depression), behavioral, or learning concerns (e.g., specific learning disorder) in the absence of known or suspected developmental disorders. In cases where a referral is made for a diagnostic evaluation, psychoeducational testing, or treatment when there is no indication of a potential developmental disorder, a more appropriate referral may be made.

Clinic Services

Our interdisciplinary faculty offer numerous clinical services designed to provide diagnostic clarification, consultation, as well as intervention and treatment planning for individuals with developmental disabilities and their families. Our evaluation services may include appointments with individual clinicians or an interdisciplinary team representing two or more of the following professional disciplines: Psychology, Speech-Language Pathology, Physical Therapy, Occupational Therapy, Psychiatry, Pediatrics, Audiology, Social Work, and Special Education. The composition of the team depends on referral needs. Click here to learn more about our clinic services.

What We Do:

• Evaluations to assess development or functioning levels for individuals when there are concerns about developmental delays/disabilities or a preexisting
    intellectual/developmental disorder
• Diagnostic evaluations to assess for possible neurodevelopmental disorders, such as autism or intellectual disability
• Evaluations and consultation for individuals with neurogenetic disorders that affect development
• Offer consultation, psychiatric, psychotherapy and behavior support services to individuals with intellectual/developmental disorders
• Offer social skills groups to individuals with social communication difficulties

What We DON’T Do:

• Evaluations for ADHD (although we do offer psychiatric medication management services for ADHD), anxiety, or other diagnoses when there are no concerns regarding an intellectual or developmental disability
• Educational testing for a specific learning concern in the absence of intellectual/developmental disability concerns (referrals for standard psychoeducational
  evaluations should go through an individual’s school program first given that educational assessments are typically not covered by insurance)
• Offer treatment to individuals who do not have any concerns regarding an intellectual or developmental disability
• Offer acute care or crisis intervention services, or serve as a primary care provider
• Offer ongoing speech-language therapy, occupational therapy, or physical therapy (though we currently offer evaluation and consultation services for speech-
  language and physical therapy)

If you have questions about our services, intake process, or other referrals, please contact the CIDD Intake Team via email at CIDDIntake@cidd.unc.edu.

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National Core Indicators

The Carolina Institute for Developmental Disabilities subcontracts with the Quality Management Team of the Division of MH/DD/SAS (Department of Health and Human Services) to conduct part of the National Core Indicators (NCI). The NCI is a national effort to collect information on the effectiveness of state developmental disabilities services in a format that can be compared across states and that can be used to benchmark progress within states. The subcontract involves a Consumer survey of up to 900 adults receiving services from Area Programs across N.C. The CIDD works collaboratively with the Division to edit survey forms, and recruits surveyors, trains them, distributes surveys in an appropriate manner, collects the survey data, checks the data for completeness and accuracy, and submits the data to the Division. One part of the Consumer survey is conducted in person with individuals with disabilities; a second section is completed either with the consumer or another respondent (family, advocate, staff). In addition, the CIDD helps prepare and distribute three complementary surveys (approximately 1800) to families who have children or adults with developmental disabilities to determine family satisfaction with state services.

For more information, please contact: Debra Reinhartsen, Ph.D., Speech-Language Pathology, or Rebecca Pretzel, Ph.D., Psychology

Learn more about how to contact for services with the CIDD.
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