Research Participant Registry Core

This research is funded by the National Center for Advancing Translational Sciences (National Institutes of Health). We want to see how our brief telehealth assessment compares to an assessment at a clinic like the CIDD. This validation study is part of a larger study called the Brain Gene Registry (BGR) study, which looks at how changes in brain genes affect individuals. By participating in the validation part of the BGR study, you will help us figure out if the results of the telehealth assessment are valid (similar to the results from a clinic assessment).

Children and adults diagnosed at UNC with an intellectual or developmental disability. Participation is all virtual—on-line questionnaires, a telehealth assessment, photos, and review of medical records. Contact: jessica_kinard@med.unc.edu or 919-533-9305