The Carolina Institute for Developmental Disabilities at UNC
The Carolina Institute includes:

Research Participant Registry Core

Bringing Together
Families & Researchers

Core Personnel & Contacts

Associate Director:
Renee Clark, M.S.W.
Family Recruitment Coordinator:
Mary Hannah Currin, B.A.

Thank you for your interest in research at UNC.

Announcements & Events

2018 Monthly Community Talk Series

On the second Wednesday of each month from 6:30 - 8 pm at the CIDD Building in Carrboro, NC.
Speakers on topics relevant to developmental disabilities. The 2018 schedule includes: positive behavior supports for adults with IDD, teaching social skills to young children, residential options for adults with ASD, neuro-diverse marriages, and deciding about disclosure of disability status . Come learn about the latest advancements.
Free! Informative! For families and practitioners.

Video Archive of CIDD Community Talk Series

Slides and videos of past Community Talk Series presentations. Topics of interest for families and practitioners

Three UNC autism research studies earn end-of-year honors

The NIH, Spectrum and Autism Speaks singled out innovative work from Joseph Piven’s research team as top studies advancing the field of autism research in 2017. Dr. Piven is the Principal Investigator of the IBIS Network, a 4-site brain imaging and behavioral study of infant siblings of children who have autism. Details about about the findings are available on the IBIS in the News page on the IBIS website.

UNC Joins SPARK, A National Autism Genetics Study

WHAT UNC FAMILIES ARE SAYING ABOUT JOINING SPARK: “Just knowing that we could be a part of something bigger to help others is important to us.”

UNC named NIH Autism Center of Excellence for third time

As part of a five-year, $7.5 million award, UNC researchers led by Joseph Piven, MD, will follow up on innovative imaging studies to create interventions to help children with autism.

Brotherly Love: An Autism Story (video link)

UNC undergraduate Austin Ludwig works with us at the Registry at Carolina Institute for Developmental Disabilities to play a role in autism research he hopes will help millions of people, perhaps even his younger brother. Click the title link to watch this video story.

Research Findings

SPARK Snapshot

This is Report 1 from the SPARK for Autism Study which started in December, 2015. These are interesting findings from information that families have provided to the study.

UNC Researchers use MRIs to predict which high-risk babies will develop autism as toddlers

This first-of-its-kind study used MRIs to image the brains of infants, and then researchers used brain measurements and a computer algorithm to accurately predict autism before symptoms set in.

Researchers Link Difference in Cerebral Fluid in Infancy to Autism

A national research network led by UNC School of Medicine’s Joseph Piven, M.D., found that many toddlers diagnosed with autism at 2 years of age had a substantially greater amount of brain fluid at 6 and 12 months of age, before diagnosis is possible.

2016 release: New autism prevalence rates in NC & USA announced

The North Carolina prevalence statistics are reported by Dr. Julie Daniels, director of the UNC North Carolina Surveillance site of the CDC Autism and Developmental Disabilities Monitoring Network.

Family Implemented TEACCH for Toddlers Efficacy Study

Results on the effects of a 6-month in-home intervention for toddlers with autism.

The Fungicide Effect on Brain Cells

Mark Zylka’s research into chemicals altering gene transcription in neurons gains international attention. View video on this site.

TEACCH Long-Term Adult Outcomes: Project Summary

Preliminary findings from the survey of the Long-Term Outcomes study of adults who were diagnosed with an autism spectrum disorder by the TEACCH Autism Program between 1965 and 2000.

MRIs Link Impaired Brain Activity to Difficulty Regulating Emotions in Autism

A summary of recently published research findings from a UNC Functional Neuroimaging Study in the Journal of Autism and Developmental Disorders

Baby Sibling Research Study Results on Brain and Repetitive Behavior

This summary describes results from the IBIS Network study of baby siblings at risk for autism.

Full Community Report of Prevalence Rates and Implications

This is the comprehensive report of the findings from the study of a cohort of children who were 8 years old in 2012.

FPG Autism Researchers Release Evidence-Based Practices Update

The authors screened 29,000 articles to locate the soundest evidence-based interventions for children and youth with autism. A downloadable report

Sensory features in children with ASD

Findings from the development of a new diagnostic tool for sensory experiences in children with autism and developmental disabilities

UNC scientists pinpoint how a single genetic mutation increases autism risk

An article published August 2015 describes discoveries about the mechanisms of a single gene mutation linked to autism.

The Atlantic tells story of adult autism through research at UNC

Joseph Piven, MD, and his team are trying to fill the gaps in our understanding of what it has meant and will mean to live with autism as older adults.

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