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UNC's UCEDD Grant Renewed for Another 5 Years

Abstract for the UCEDD Renewal at UNC (recently re-funded for another 5 years at a total of $2.77M).

The North Carolina University Center for Excellence in Developmental Disabilities (NC UCEDD) at the Carolina Institute for Developmental Disabilities (CIDD) University of North Carolina at Chapel Hill (UNC) submits this application for core funding from the United States Administration on Developmental Disabilities (ADD). The proposed activities of the NC UCEDD are based upon a 5-Year Plan of goals and objectives developed in concert with the Consumer Advisory Board of the NC UCEDD, the NC Council on Disabilities, and Disability Rights of NC (NCs Protection & Advocacy program). The NC UCEDD 5 Year Plan is organized around the core functions of: Pre-service Preparation and Continuing Education, Community Services, Research, and Information Dissemination. The planned activities address the responsibilities described in the Developmental Disabilities Assistance and Bill of Rights Act of 2000 and complement the plans and activities of the ADD partner agencies in North Carolina. The proposed activities will emphasize culturally competent services and training and will emphasize the needs of the un-served and underserved citizens of North Carolina. These activities will be carried out by the NC UCEDD’s highly qualified faculty representing 10 professional disciplines, a family faculty member, and self-advocate staff members. In addition to the state’s ADD partners, the activities will be carried out in partnership with state agencies, advocacy groups, provider organizations, and other concerned members of the disability community. Particular areas of emphasis for the NC UCEDDs proposed 5 year plan were chosen and developed based on a comprehensive survey of state service gaps / needs and an analysis of existing disability policy and programs in NC. These areas of emphasis for the NC UCEDD will include (a) self-advocacy, (b) post-secondary education and transition to employment, (c) community-based services research and evaluation (e.g. variability in practice patterns, gaps in access to services, costs of services, rural services), and (d) capacity-building through specific disability training and leadership training statewide. The NC UCEDD is an independent center within the University of North Carolina hat operates administratively under the Dean of the UNCs School of Medicine.


Since 1963, University Centers for Excellence in Developmental Disabilities (UCEDDs) have worked towards a shared vision that foresees a nation in which all Americans, including Americans with disabilities, participate fully in their communities. Independence, productivity, and community inclusion are key components of this vision.

Currently, there are 67 UCEDDs-at least one in every US state and territory-that are in a unique position to facilitate the flow of disability-related information between community and university. Centers work with people with disabilities, members of their families, state and local government agencies, and community providers in projects that provide training, technical assistance, service, research, and information sharing, with a focus on building the capacity of communities to sustain all their citizens.

UCEDDs have played key roles in every major disability initiative over the past four decades. Many issues, such as early intervention, health care, community-based services, inclusive and meaningful education, transition from school to work, employment, housing, assistive technology, and transportation have been directly benefited by the services, research, and training provided by UCEDDs.

The national network of UCEDDs is authorized under Public Law 106-402 (The Developmental Disabilities Assistance and Bill of Rights Act of 2000 or "DD Act") and their core funding is administered by the Administration on Intellectual and Developmental Disabilities (AIDD).

To implement their core functions of providing preservice preparation, services (including technical assistance, community education, and direct services), research, and information dissemination, UCEDDs leverage their core funding to partner with other federal, state, and local resources.

With research, demonstration, and personnel preparation funding from the US Department of Education (ED), National Institutes of Health (NIH), Health Resources and Services Administration (HRSA), Centers for Medicare and Medicaid Services (CMS), and Centers for Disease Control and Prevention (CDC)-among others-UCEDDs have undertaken numerous projects in areas of importance to people with disabilities across the lifespan and their families, such as in health promotion and prevention, education, employment, self determination, family support, national and community service, and autism.

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